Yes, it looked bleak - lots of "ifs"
and lots of questions! One night as I lay in bed, I
got to thinking about all the incredible miracles God
has done throughout time. I thought about those who
followed Jesus hoping to be healed. One example
was a woman who had hemorrhaged for 12 years
and just by touching His garment was healed (Luke
8:43-48)! I thought to myself, "Yeah, I'd do
that...Oh, to touch His garment and have this cancer
leave my body for good!"
But then I was reminded, "Tricia, you've
already BEEN touched by greatness! The Triune Godhead
lives IN you!!" (Romans 8:9-11) If He decides to
clean house (my body, His temple), He can and will!!!
Because this is the fifth time cancer
has intruded on my life, I have learned...IT IS NOT A
DEATH SENTENCE -- IT IS A TRIAL. Therefore, I am excited to see what He
will do AGAIN in my life!! It is through "trials" that God refines
and conforms us to the image of His Son, Jesus
Christ. (James 1:2-4)
I also know that even though I cannot
see into the future, that God is working this trial
out for my good because I love Him (Romans 8:28).
Think of all the people I'm going to be
able to touch with the Good News that I would NEVER
have the opportunity to do so if I were healthy!
Therefore, please know that I am
excited about the road ahead. I am NOT alone...I have
the most wonderful, supportive husband; a loving
family; many, many sisters and brothers in Christ; and
an awesome, awesome God, My Great Physician!! My
prayer is that He will receive the glory NO MATTER
to Use This Journal:
As you can see below, I have the most
current entry first so that you will not have to
down every time you come to the site. If this is your
first time, you might want to start at the bottom of
the page and work your way back up to see what has
happened since February 2002.
Due to ongoing issues, my
cancer as well as scar tissue and adhesions from
surgeries, I occasionally get a blockage somewhere
in my small intestines - due to constant vomiting, I
usually end up in the ER to stop the vomiting and
get much needed fluids.
Presently doing hyperbaric oxygen chamber one to two
times a week with occassional IV Vitamin C.
Nine days in the hospital! I
had an unusual cough that just would not go away.
Ended up being ascites fluid (weeping fluid from
peritoneal scar tissue) and had collected around my
left lung. Two-thirds of my lung had collapsed.
This is called a pleural effusion and you can learn
more about it at the following link:
surgery was performed called Pleurodesis to insure
that no more fluid would surround my lung:
Since I've grown tired of chemo, radiation, and surgery -- just returned from MD Anderson in Houston, TX.
Genomic testing has been done and then we'll be looking into trial testing once results come back.
It's been almost three years and I am finally eating anything I want again with no fear of
vomiting. Still do not know what precipitated the bowel problems after the surgery in 03/17/11.
returned from Israel!! Oh to walk where Jesus
Two weeks of pain then NOTHING! It’s just gone!
Began the 49 Day Cancer Cure program which you can find at
Was scheduled for surgery yesterday! Cancelled because I had NO green lights – only red – mainly because my OBGYN wanted another surgeon present “in case” intestines needed to be disected!! Although I had a lot of pain, I didn’t want to wake up from surgery worse!
It's over . . . again!
Had my chemo port removed and all went
well. Glad to see 2011 in my rearview
night, Pastor Brandon and about ten other
wonderful prayer warriors came and prayed for my
recovery and strength through this trial (James
5:14-16) and I was so comforted by it all as
well as my husband, Scott.
NOT going to the Burzynski clinic at present. I
was disappointed when I went to Houston to find
out chemo was part of their program as well as
NO funding by health care.
Therefore, might as well have chemo here! I
still don't have a date for the chemo port to be
put in, but I'm scheduled to start the chemo on
Chemo will be less toxic as I am not having
Taxol...should not lose my hair this time! Also,
rather than four hours once a month, chemo will
be administered once a week for only 30 minutes.
Not sure yet how many I will have to have.
the saying, "Never say
Never?" Chemo it is!
Scott and I had a
devastating two days in
Houston . . . lots of tears
For the antineoplastons to
be most effective, the
current cancer must be wiped
out. One good thing is that
they will be administering
Gemzar rather than Taxol
which is less toxic . . .
might not lose my hair and
will not cause further
Therefore, I'll have my
first treatment the week of
September 19th and they (Burzynski
Clinic) will be evaluating
me every day for two weeks.
It will be VERY expensive
because it will ALL be
out-of-pocket due to the
fact that the clinic does
not have affiliations with
ANY healthcare providers.
Just got bad
results from a Pet/CT scan taken
on August 8th and it's
unanimous! My GYN, Oncologist,
agree . . . I should have chemo
. . . right away!
BUT, Tricia does
not agree. I'm leaving for
Houston next week for a
consultation at the Burzynski
). He has
developed antineoplastons which
act as molecular switches to
turn off cancer cells without
destroying normal cells.
It is totally non-toxic . . .
Also, great news
. . . I'm not throwing up as
much. I was throwing up almost
every week, but the last time
was August 10th!
It's been over
three months since my surgery
and except for one two week
span, I have thrown up at least
once a week. My weight is now
recommend this for a diet plan).
Tomorrow I leave for
Gainesville, FL to try
"deep-tissue" therapy at the
Clear Passage Clinic
with the goal
being to move adhesions
and hopefully the blockage also.
I will have 20 hours of therapy
in one week (2 hrs in the
morning and 2 hrs in the
Lessons learned: Not
told that anytime you do
abdominal surgery with pain
medication, your intestines/bowels will
constrict! I was not advised to
stay on liquids only for seven to
ten days. I'm doing much better now and
after three weeks I'm holding solid food
Rushed back to the
hospital! Blockage remained. Stayed
another 4 days.
week after surgery went to get my clamps
removed. Problem threw up in doctor's office and
continued the rest of the day. Knew that I was
approaching dehydration, so I was rushed to back
to the hospital where they found that I had a
small bowel obstruction due to the pain
medication that I was taking. Receiving my pain
and nausea meds through the IV -- much easier!
Thanks for the many prayers -- the
surgery went great. The mass was free floating and
easily removed! One VERY interesting point...
remember the small mass back in 2009 that I was SO
close to during a robotic surgery?? While doing this
surgery -- found out it was only scar tissue!!
Can you imagine...I almost put in a chemo port,
almost ruined my immune system (again) with chemo,
AND had surgery for nothing! I am so thankful for
that "click" in my spirit from THE Spirit to wait!
Things are moving quickly. Saw my
surgeon today and surgery is scheduled for next week!
Special friend is setting up a top team for the O.R.;
and I've already had an EKG, blood work, and
ultrasound in preparation for surgery. Tomorrow,
a chest x-ray and I'll be ready to go!
Prayer request: That the
mass is NOT connected to either the stomach or the
WOW! It's been over a year since
my last entry, but a lot has transpired. Had a
Pet/CT Scan on the 17th and the news is not good.
I now have a 4.2 cm (approx. 2 inches) mass in between
my stomach and pancreas...SUV has gone up to 7.5...and
I've got an appointment with my surgeon on March 9th
to schedule my fifth debulking surgery.
Great News! Pet Scan revealed
that the mass has decreased in size . . . PLUS
the SUV is still going down! It was 7.9 in
September and now it's 5.1!! I've decided that
I'm not having another Scan until 2011. I'm
going to give my body a rest from all the radiation
and continue to put my trust in Jehovah-rapha and the
prayers of many for my healing. Thanks to all!
WHOA! I'm not doing chemo!
Everything was moving SO fast . . . get the port
surgery set up . . . plan on starting chemo at the
beginning of November . . . yet I had NO peace about
the decision. Therefore, I stepped back, prayed,
and had many prayer warriors also praying for wisdom
in my decision. It suddenly became crystal
WAIT! I'm going to wait for three
months, have another CT (or Pet) Scan, and we'll see
whether or not it's growing. Another reason to
wait is the SUV (standardized uptake value) which
determines the metabolic activity
10 and now is 7.9!
The tumor is dying!!
Here we go again! Scheduled to
have the chemo port put in AGAIN this coming Friday
and will begin yet another six months of Chemo
starting the first week of November. In three
months, I'll have a CT Scan to see if the mass has
decreased in size. IF after three months it has
not, I'll have the robotic surgery to remove it.
So...this week, I'll be picking out a
lovely wig! No more coloring, cutting, and blow
drying for a while. It's very ironic. I
just posted a before and after picture of me on the
"contact" page showing how all my hair had grown back
since 2002...Oh well...it will grow!
Spoke too soon! A new lump has
emerged...this makes No. 5! It's in a BAD
location. It's at the base of my right rib
between the lung and diaphragm; therefore, every time
I breath the very tender skin of the lung hits the
lump. Result: not sleeping well AT ALL.
I'm checking out a new surgical
procedure called "DaVinci Robot." It will entail
a smaller incision thus quicker healing time.
Over a year since last surgery and I've
had my fifth
CT Scan this month. All is stable! Oncologist
said one of the small lumps has decreased!
I've also had the opportunity twice
(with two other survivors of ovarian cancer) to speak
to nursing students at Baptist Hospital and Barry
University. Ovarian cancer is hard to detect as
pains come in many different forms. I'll
be speaking along with two other women this fall at
Barry University and it will be simulcast in
It's a new year! I had four
CT Scans during 2008 and NO cancer! There are
two small lumps (one somewhere in the abdominal area
and the other close to the spleen), but not sure if
its malignant as it has NOT grown!! I'm VERY
optimistic about the future.
It's been almost four weeks since the
surgery. I'm back teaching Precepts. I've
also seen my Oncologist who suggested chemo, but I
declined due to the fact that it was only one
small tumor. If the cancer is to return, it
would occur within a year; therefore, I'll be having
CT scans every three months for the next year.
Once again...I LIVE TO TELL WHAT THE
LORD HAS DONE!
On the 14th, I underwent a fourth
surgery to remove yet another tumor. I was in
of the hospital in only 2 days!! Today, I
had staples removed from my 7 inch long incision, and
each day is better than the one before.
Many, many thanks to all who interceded
to the Lord on my behalf.
James 5:13-16 "Is anyone among you
suffering? Then he must pray. Is anyone cheerful? He
is to sing praises. Is anyone among you sick? Then he
must call for the elders of the church and they are to
pray over him, anointing him with oil in the name of
the Lord; and the prayer offered in faith will
restore the one who is sick, and the Lord will
raise him up...pray for one another so that you
may be healed. The effective prayer of a
righteous man can accomplish much."
Psalm 103:2-3, "Bless
the LORD, O my soul, and forget none of His
benefits; Who pardons all your iniquities, Who
heals all your diseases."
Pet Scan revealed that one of the spots
was "hot" indicating that it is in fact malignant;
therefore, I have been scheduled for a debulking
surgery to remove the lump (about the size of a lima
bean) in the middle of March. The other spot was
blocked by something but I'm sure it will be taken
care of during the surgery also.
Yearly CT scan in December revealed two
more new, yet very small, spots.
Yearly CT scans and all is well!!
No evidence of metastatic disease! Health is
excellent by the grace of God.
Great news! It's been two years
since my last Pet Scan and this week I had another
one! All is well...praise the Lord...AGAIN!!
No evidence of metastatic disease!
Also, after two years, my hair is
completely back! I had the whole tamale done on my
REAL hair...color, cut, and highlights. It's
still a lot more work than my wig, but it's great to
have it back!
It's been almost a year since my last
entry, but still praising the Lord for my health!!
I've had another CT Scan in December that was all
clear. I've FINALLY cut off all the burnt hair
and have about two inches of new growth.
Hopefully by the fall (two years from last chemo),
I'll be out of my wig...although it's SO easy!!
I'm back! Over the last six
months, I've had another CT Scan, a bone scan, AND
I've had my chemo port REMOVED!! There have not
been any new growths! Praise the Lord!!
I have about 3 inches of hair (if you
want to call it that!). It's not a pretty
picture! I'm still wearing wigs...on purpose!
The chemo stripped my hair of color as well as
control. It reminds me of an SOS pad! BUT,
the word out there is...it will return to the way it
used to be in a year or two (or three)!! We'll
I'm out of the holding
pattern! I do NOT have to have any
further chemos! Dr. C. feels that my immune
system could not take it. After six weeks, my
immune count is only up to 1.5 (the average range
being 3.7 to 4.9). I will now be on maintenance
. . . seeing my doctor every four weeks. Praise
the Lord for His healing!
Saw Dr. C again today.
Blood work revealed no significant change to immune
system; therefore, we are in a holding pattern.
We may or may not do the additional three chemos.
The toxicity of the
Taxol has caused neuropathy in my toes (numbing -
nerve damage). As a result, if an additional
three chemos are done, we will be using Taxotere (less
toxic than Taxol) and a lower dosage of carboplatinum.
Went to see my doctor
today and received some disheartening news. Dr.
C wants to do an additional THREE chemos (total of
nine). Statistics show that nine tends to hold
off reoccurrence of cancer better than six. And
I thought I was done! My doctor had
actually wanted to tell me this prior to my vacation;
but, bless his heart, he wanted me to have a great
The only problem that
still remains is my immune system which almost four
weeks after chemo is still in the tank. This may
also be a result of the over-radiation in '73 on an
area of the bones that produces most of my white blood
It's been almost a
month since my last chemo; and in that time, Scott and I
have taken a wonderful trip to Quebec City! It
was beautiful, and I walked more in two days than I've
walked in two months. I'm still taking the
Neupogen shots to help my immune system get back to
normal, but it feels so good to be on this side
of the chemo!
Three weeks after your final chemo (when your hair
falls out for the last time), it was recommended to me
to shave my head so that my hair will all grow back
6th (LAST) Chemo!!
Praise the Lord...IT'S OVER!! No more chemos!!
Today, my immune
system, as well as the white and red counts, were all within the
boundary rates and I was able to take the chemo.
I'll have one more month of numb toes, foggy brain,
and hair fallout. By Thanksgiving, I may have
some eyelashes back!
Went for last minute blood work before my next
scheduled chemo on the 13th. My white count was
in the tank AGAIN, and I left with three more Neupogen
injections. Also went to see the Allergist last
week...I don't recommend them. He basically
looked at me and said - you've had an allergic
reaction! - then he proceeded to throw samples of
drugs at me. Waste of time. I will
continue to itch and take Benadryl.
Reactions, reactions, reactions! The past two
days, I have been dealing with the itchy fingers and
feet! This time, however, I had welts and my
lips swelled up. After visiting the hospital, I
was told to double up on the Benadryl. This
week, I will be seeing an Allergist to see if I can
get some help with the itching.
Had my fourth chemo today. I arrived
about 8:45 a.m. and was escorted directly into my
"bedroom" where they hooked me up to the chemo port
and took out some blood. My white count was 2.02 (they
will NOT give you chemo if it's lower than 2.0, so
once again I was very fortunate). The chemo was given,
and I was sent home with six Neupogen shots which I
will administer to myself. I'm weak as a puppy and
have spent most of my day sleeping.
It's been raining most of the day,
so it was a good day to stay home. Now I'm going to
have a big steaming bowl of Texas chili...yum, yum,
good! It's going to end up a lot better than it
Well...here we go again!
My white count was lower today than it has ever been.
Therefore, I am back to giving myself Neupogen shots
and antibiotics daily, and chemo number four has been
rescheduled for next Thursday, July 18. I was also
informed by my doctor that I am going to have at least
six chemos total which will take me into September.
I go for my fourth
chemo this week on Thursday. Over all, I've been doing
okay...Only have about ten bad days and the rest of the
month I'm back to my ol' self. :-)
The weirdest thing
that I experience is itching. If I scratch myself
ANYWHERE it begins to itch like a mosquito bite! My
feet and hands itch the most. I can usually take a
Benadryl (only when I have time to sleep because it
knocks me out) and it takes care of this problem
I actually had about
a half inch of growth on my head this month, but it
all of a sudden fell out again. This makes sense
because the first time I lost my hair, it occurred
about three weeks after my first chemo. The worst part
is that I don't have ANY eyelashes!!! My eyes look
absolutely naked!!!! I'm getting pretty good at
putting on false ones, but what a bother. It is nice,
though, not having to shave! There are blessings in
everything, I guess.
Well, my "infection fighters" are low
again. I am now taking antibiotics and GIVING myself Neupogen
shots!! I also cannot eat some of my favorite
foods in order to avoid possible bacteria... fresh vegetables, yogurt, or
I feel great, but due to the low immune
count in my body I am at greater risk of getting sick
from others and possible infection.
Useful Information: Prior to receiving chemo,
several things are given to help combat the side
effects...one is Decadron, a steroid. This week,
after getting so sick, I was also given Decadron to
take twice a day for three days to combat nausea.
Here's what happened next... I broke out in VERY
itchy pimples all over my neck, back, and chest!
(Steroids also have other unpleasant side effects such
as major water retention and weight gain.)
My dermatologist told me that this type of acne is a
common reaction to the steroids and he recommended
some over the counter items that you might be
interested in getting...Calamine lotion and Aveeno
Anti-itch Cream (for itching). He also prescribed
some Pledget pads (to help dry up the acne).
I have been so sick.
Normally, a couple of days after chemo, I had one hurl
and I was ready for the rest of the day. Not
My friend, Jane, came to pick me up
(arranged behind my back by Scott). I think he was
worried that I might possibly get bad news from the
Pet Scan and he did not want me to be alone (since
he's out town).
I threw up right before Jane arrived,
again when we walked into the hospital, again we reached the doctor's office, again while
waiting for a shot to help the nausea, and again after
picking up my prescription for nausea downstairs!
Anyway....here's the news from the Pet
Scan.... NOTHING!!! There were NO MORE TUMORS!!!!
Praise the Lord!!
I've got to tell you that I knew in my
heart that nothing would be found because I am still
convinced that all that I am going through right now
is due to too much radiation back in '73.
Now the question remains, when is
enough, enough on the chemo? I am now praying for
wisdom on my physician's part and that the appropriate
blood work will reveal when the time is right.
What a mighty God we serve! I am
forever in His care! Love, Tricia
Yeah, Hooray...my white count was acceptable today and
I was able to have my third chemo. My count went from
1700 to 4300 (the acceptable range being 2000). The
port worked like a charm and even cut the time down
from 5 hours to 4.
Another nice thing about having my
chemo at Baptist (beside the 10 minute drive!) is that
they use BEDS not loungers... therefore, after the
introduction of Benadryl at the beginning of my chemo
session, I laid back and was off to dream land almost
immediately! The session started at 9 a.m. and I woke
up at Noon...left at 1 p.m.
Also, last week I had the Pet Scan and
CT Scan. The Pet Scan machine is an awesome piece of
technology! There are only five of these machines in
the U.S. at 3 million per machine and $3,000 per scan
-- needless to say many insurance companies are not
interested in paying that sum, but fortunately, mine
The tech showed my husband the Pet Scan
of a woman who had traveled from Chicago to have a
lump in her breast (found by a CT Scan) examined by
the Pet Scan. This machine not only showed the lump
in the breast but SEVERAL lumps in the lymph nodes!!
Incredible! She would probably have had the lump
removed and yet not known that she still had a
They inject a radioisotope through an
IV which is like a magnet to cancer...why .... because
cancer LOVES sugar, and there are high concentrations
of blood glucose around any malignancies! The cancer
then shows up black on the Pet Scan. I will find out
my results this Wednesday.
Scott and I are still amazed at the
Lord's leading us to Dr. C. Because of the change, I
am now having C-125 blood tests (a marker for cancer)
as well as this incredible Pet Scan!
Thank you all once again for your
prayers! Oh, and here's something funny. I went to
pick Scott up for lunch at work, and when we returned
he jokingly said, "Don't come up the office...if they
see how good you look, they'll stop praying!!"
Today, I had both a Pet Scan and an
Upper CT Scan. The machine that does the Pet Scan is
something else! There are only five of them in the
United States, and they cost over 3 million a piece!
It costs $3,000 per scan and, fortunately, my
insurance covered it.
The tech that was doing my scan showed
Scott the difference in a CT and the Pet. One woman
came from Chicago to have a Pet Scan done because a CT
Scan found a lump in her breast. The Pet Scan,
however, was able to show several lumps in her lymph
nodes that the CT Scan could not pick up!
A radioisotope was put in my body through
an IV and it is like a magnet to cancer (which has a
high concentration of sugar). The cancer will show up
black on the scan.
Scott and I are excited to see the
results! And to think, had the Lord not led us to
this new doctor, this procedure would never have been
done! He is truly in control!!
3rd Chemo was called off
this morning. My white count was too low once again.
I'm due to try again on the 17th.
Surgery this morning to install a port
in my chest to administer future chemo. It looks like
a bottle cap under the skin.
My hair is all gone and I now have a
new doctor! My new doctor is only 15 minutes away
verses the other which was a 40 minute drive in
terrible traffic. So for
that reason alone, I'm thrilled!
One thing that Dr. C was VERY surprised
about was that I was receiving my chemo through veins
in my wrist. He said that they always used a shunt
(about the size of a quarter placed in a "dedicated"
vein on the upper chest) for safety. He also informed
us that placing the chemo in the veins in the wrist
could lead to ulcerated veins, and it is true that the
first vein used for my chemo still hurts!
I have also had to take 7 shots of
Neupogen during the month of May (administered in my
home - one a day for a week) to help boost my immune
"The Lord's lovingkindnesses indeed
never cease, for His compassions never fail. They are
new every morning; great is Thy faithfulness. 'The
Lord is my portion,' says my soul, 'Therefore, I have
hope in Him.' The Lord is good to those who wait for
Him, to the person who seeks Him."
One funny thing has been added to my life since the
first chemo... I was told that a moist, hot mat would help
for joint pains so I drove around looking for a big
one! Thanks to my radiologist friend, I ended up
making one (the content being rice - look under "Resources" to find out how it's made). Well, I had
extra material left over, so I made a couple
more...then I ran out of rice, so I went to purchase
some more. Well, it was buy one get one free! What
would you do? Yes, I ended up with two. NOW, I've
bought more material!!! ha ha Gave one to a sweet
lady in my church who is also having chemo. I guess
this is a new ministry! The Lord works in mysterious
ways!! (See Resources for directions to make
2nd Chemo. I
am sending this to you from the hospital where I
am having my second chemo. It's been great having my
little computer. I can listen to wonderful music, and
Scott spent a lot of time cruising the news on the
Suffering from bladder infection and
"maybe" a kidney infection as well. My back is on
fire. I received antibiotics and something for the
pain from my urologist. He also gave me the
name of a medical oncologist (Dr. C), who was VERY effective in helping his wife
through breast cancer. He called Dr. C while I was
in his office, and an appointment has been set up for
My chemo was delayed until next Monday,
the 13th, due to a low white cell count. I
found out that this is not uncommon. Once again, if
the white count is low, the immune system is hampered;
however, if the red count (which carries oxygen
throughout the body) is low, my energy level will
Well...something's wrong with my blood
count. I was called at 5:00 p.m. today to be told
that my chemo would be put off for one week...THAT'S
IT. I have NO idea what's wrong with the count
because my doctor's nurse did
not find out that information! I won't know until
tomorrow when they speak to the chemo nurse.
Many have asked me after my last update
... Does this change the prognosis? NO ... I still
have a very aggressive cancer called Primary
Peritoneal Carcinoma. It is just good to know "Why"
this is happening! Too much radiation 30 years ago.
I also found out that the "debulking"
surgery was a good idea PRIOR TO chemo. The tumors
that could be seen were removed so that the chemo
doesn't have to work on those but rather the cancer
that's left and not visible to the eye.
Hallelujah!! The Lord has finally
answered the "Why" question for me. The main
question that I've had is: Why three different
cancers in one body in one lifetime? I'm a healthy
woman ... I don't smoke .... I don't eat junk food ...
what am I doing wrong?
Today, I had a consultation with the
Director of Radiation Oncology. This consultation was
to determine whether or not radiation would also be
used in conjunction with chemo.
However, after they learned how much I
had in 1973, I was informed that I am NOT a
candidate. As a matter of fact, the cancers I had
been suffering since are most likely caused from the
excessive radiation received in 73. This was a
relatively new technology back then (only 30 years
after Hiroshima) and as yet people did not know the
effects of radiation on the body.
Today when someone gets dysgerminoma
(my first cancer), a patient receives only one week of
radiation... also, for ANY kind of cancer, they rarely
use more than two weeks.
I received 43 treatments of
radiation directly on the abdominal
There were three criteria used to
determine whether or not my cancer may have been
related to past radiation, and I met all three: (1)
Occurs 20 years after initial cancer, (2) Occurs in
the same area, and (3) It is a different kind of
As a result, when I went in for the "debulking"
surgery at the end of February, the cancer was all
over the abdominal area. The omentum (which is a
fatty layer that lies in between the skin and the
organs of the abdominal area) was removed during the
surgery due to all the lumps found in that surface
tissue! I've even had two tiny red patches removed
from my tummy that had signs of malignancy, and I'd
always wondered how in the world I got those!
This is possibly the reason that there
is NO primary tumor ... it is simply the result of
being exposed to too much radiation. It all makes
sense now! Primary Peritoneal Carcinoma.
I now see how merciful the Lord has
been to me just by all the healing that has occurred
over 30 years. He is and will continue to be my Great
Useful Information: Thanks to a
new friend who has already been through chemo, I found
out that when you get up in the morning you need to
eat something ASAP. It worked! Today, I did not
toss!!!! Yeah!!! We went to a nice place for lunch
where you sit outside, and the day was beautiful. We
then walked around a couple of stores to get a little
exercise. I'm terribly weak! Anyway, it's a day by
day thing. Hope it will continue to get a little
better each day.
The next day started off the same
way...tossed then rested. Now though I'm sore all
over...kinda like the flu...especially painful are my
legs and ankles. Really weird.
NEVER told that I would experience constipation!
I was miserably constipated for three days!
After the fact, I was told "Oh, you might want to take
a Ducolax after your chemo" ...thanks!
I had my first chemo last Tuesday.
Wednesday was great, I thought - no problem! I'm
going to skate right through this! But then came
I got up, did my hair, got dressed, and
right when we were getting ready to walk out of the
house, I tossed my cookies with VERY little prior
notification! Therefore, I decided it probably would
not be a good idea to go out that day.
My dear husband, Scott, made me a tuna
fish sandwich with some cantaloupe and grapes on the
side. Later in the day, we played a game of Scrabble, and we went out to dinner
Today, I had the first of six chemos. I arrived at
9:30 a.m., but did not start the process until around
11. Fortunately, I had a lovely, quiet, private room
(no death by soap operas!!) where I could turn on my
computer and listen to classical music.
Once the IV was in, I was given three
different products to ensure that I would not have an
allergic reaction to the chemo. Then the first chemo
was a product called Taxol which took three hours to
drip and then Carboplatinum which only took an
additional 40 minutes.
Scott went down to the cafeteria and
got himself a tuna salad and brought me one back. It
was delicious...only bad thing was he bought me a
Reese's peanut butter cup! UUMMM UUUMMM GOOD!!
Can't remember the last time I had one, but it was as
good as I remember!
I've been told that I will probably
have "flu like" symptoms and maybe some nausea, but
they gave me some pills for nausea should that occur.
Also found out that I will most likely lose my hair by
the next appointment on May 5th.
My appointments will be every three
weeks, but between now and then I will be going for
blood work every Monday, so here's my prayer request.
It is very important that my white and red count stay
stable. If the white count gets too low, I lose my
ability to fight off whatever is flying around in the
air...colds, etc. If my red count gets too low, my
energy level will drop due to lack of oxygen carried
by those cells. Isn't our body fascinating? We have
truly been fearfully and wonderfully made!
I am more motivated to give to our
local American Cancer Society as they have a wonderful
program for women with cancer. It's a program called
"Look Good, Feel Good" where they do makeup and give a
FREE wig! Isn't that special? They also gave me a
book of hats and wigs that I can order, and the prices
look to be at cost.
Today, my pastor and the elders of the
church prayed over me after church.
Is anyone among you sick? Let him
call for the elders of the church, and let them pray
over him, anointing him with oil in the name of the
Lord; and the prayer offered in faith will restore the
one who is sick, and the Lord will raise him up, and
if he has committed sins, they will be forgiven him.
Therefore, confess your sins to one another, and pray
for one another, so that you may be healed. The
effective prayer of a righteous man can accomplish
Pill Form? Useful Information:
it would be so corrosive on your GI tract that even
the Decadron would not be any help, and you would get
less to the blood stream from the GI track.
Therefore, an IV directly into the blood stream is the
ONLY way to go with this.
The chemo will be Taxol and
Carboplatinum. I have to go to the Pharmacy tonight
and pick up medication to take the night before. It's
called Decadron 4mm (a steroid). I take 5 pills
Monday night and 5 pills Tuesday morning. Then I have
to report to outpatient for chemo on April 16th at
9:30 a.m.. I will be there until 3 or 4 in the
afternoon!!!! Wish I could take the pill form!
Went to see Dr. P (OB-GYN) this
morning. I will be starting my chemo next week and it
will take place at Jackson Memorial. Dr. P is
planning a VERY aggressive course of action. I will
be seeing him every three months to check for possible
regression of the cancer.
I have been given a 40 to 50% chance
for total cure. If the chemo is not effective, they
will try other forms of chemo. If those are not
effective, the doctor told me I have approximately 1
to 2 years for the cancer to take over other organs.
So I have been brought face to face (for the first
time) with the fact that this is truly a life or death
All the way home, I had a tape playing
over and over in my head: "I've got a 50-50
chance of seeing 50!" How depressing!
Do you want to know how wonderful and
awesome a God we serve?
When I got home, I happened to go into
one of my rooms where I have a little spiral ring with
daily bible scriptures and HERE'S TODAY'S
Psalm 118:14-15a, 17...The Lord is my strength and my song; He
has become my victory. Songs of joy and victory are
sung in the camp of the godly. I WILL NOT DIE, but I
WILL LIVE to tell what the LORD has done!!
AWESOME!!! It's a sure Word for ME!!